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Mom Provides Update on Son

by Pat on Jun 21, 2009 at 6:56 PM Filed in Parenting Autistic Children | Stories from Readers | Treatment for Autistic Children

Hello again Pat,

A few months ago had written a message not knowing you would personally respond to.Just wanted to give you a little update. In my last email I sent to you; I said I had seen you on a TV show and wrote your web site address because I related to the situations that you had been dealing with your children.And I submitted some examples about the Christmas lights and the decorations on our tree;and him spinning in a circle while his eyes looked in the opposite direction and how he couldn't eat warm foods.

At the momment I had written to you I had no insurance and was holding back to get my son tested.( I didnt know there were some free services but are very limited)He now has insurance and was imediately seen by his physician he was waiting patiently since he knew of my situation. As soon as he was seen he was ordered STAT to a pediatric neorologist, on June 3 he was seen and diagnosed with sensory integration disorder.I relayed the diagnoses to my pediatrician and he was upset said NO that is not it.So he is sending me for a second opinion. Since we live in Arizona the neorologist made a referal to AZEIP (Arizona Early Intervention Program) we had a nurse come to our home for an interview.She was there with us well over an hour and he didn't try to look at her or interact with her. She would call to him and try to get him to play with her and he didnt respond.She said to me he had many signs of Autisim and his speech is delayed by more than 50%.She told me their program only offers one type of therapy at a time but due to the fact that she had some major concerns she was going to talk to her supervisor and get my son into Ocupational therapy and Speech therapy.She to said it was a good idea to get the second opinon and to get him seen by a Developmental Pediatrician and a Pediatric Audiologist for a diagnoses.

The one concern I'm now starting to have is that I see him getting more aggressive and he is beginning to hit us with whatever object he has in his hand and he even went as far as biting my sons shoulder yesterday and wouldnt let go. I'm speaking about this to his doctor tomorrow so I will wait and see when he gets to see the pediatric neorologist or developmental pediatrician.Your website is very helpful and easy to navigate.

Thank You Pat

Patience is a gift that we share with our children.

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Comments

6/21/2009 8:00:51 PM

Thanks for the update. I've experienced hitting, biting, yelling, and throwing objects, among other things. Developing patience is a tremendous asset. Keep us posted.

Pat

11/1/2009 6:59:05 AM

Your son is entitled to a free and appropriate education under the Federal IDEA Act 2004. The school district must provide him with services and therapy as related to Autism. My suggestion is that you request an IEP to serve his needs and behaviors. Your school district, if they have an autism program, should have the educational testing necessary to classify your child to receive services under autism so you can avoid paying for diagnosis.

The IEP Team

The IDEA provides that parents of a child in special education have the right to be part of a team that decides what kind of special education the child will receive. The team can be comprised of schoolteachers, administrators, medical, health, mental health and/or educational professionals, and the child's parents. It is very important for you, as a parent, to not only be an active participant, but to be an informed and knowledgeable participant of the IDEA process. In fact, you are entitled to be an equal participant in the IEP process. If the school district denies your right to "parent participation," the school district has committed a serious violation.

If your school district does not have an appropriate program to meet your child's needs, the school is required to find one or, as a last resort, create one. By law, every child is entitled to a free appropriate public education (FAPE). This means an appropriate education, no matter what the cost.

You can contact CSHCN to see if they provide diagnostic services.

Office for Children
with Special Health Care Needs
150 N. 18th Ave. #330
Phoenix, AZ 85007
(602) 542-1860
(602) 542-2589 Fax

sandy

12/20/2009 3:20:36 AM

Very helpful information!

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3/8/2010 3:37:53 AM

Problems are not stop signs, they are guidelines.

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4/7/2010 6:20:35 PM

To be prepared is half the victory.

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