Autism Is Ok - Welcome to my world Autism Is Ok

Mom Shares Wonderful Story of Asperger Son's Improvement

by Pat on Feb 28, 2009 at 5:45 PM Filed in Autism and Education | Autism Family Facts | Parenting Autistic Children | Stories from Readers | Treatment for Autistic Children

My son was born March 7th 1994. He was a large Baby 10lbs 22inches long. He topped the weight and growth charts at the Pediatrician's office. Though he always lagged behind in the milestone charts. We were assured by our Pediatrician that all child develop at their own pace. He made eye contact for only seconds at a time and then become mesmerized by my hair or clothing or any movement from curtains and things like that.

at 6 Months He began rolling over
at 9 Months he began crawling
at 12 Months he began pulling himself up and trying to walk and continued repetative babbling.
at 15 Months he was finally walking on his own and we noticed he would open and close his hands rapidly all the time. My Husband and I thought it was just something cute he was doing with his hands.
When he became excited and happy he would flap his hands stand on his tippy toes and get a really focused "pucker face" look. This is when he began humming (rather then talking).

We had taken him to the pediatrician often and always told him about the things we were noticing and the lack of "Momma and Dadda" type speech. We were assured that we had a healthy baby and that children develope at their own speeds and not to force or rush anything.
At 18months, ur daughter was born. Our son, at first did not like her at all. If I was holding her, he would try and push her out of my arms and hum at me.
He then began to mimic her. Want to drink from the bottle laying beside her. He would hold her hand and suck on a pacifier if that is what she was doing. When she would babble and coo, he would babble and coo with her.

At 24 months and still only humming in place of speech. The Parents as Teachers lady that had visited us monthly since his birth had suggested we see an occupational therapist for testing. That he was showing signs of Autism. They checked: His throat, Hearing, Ability to walk up and down stairs, putting puzzles together, his interactions with our daughter, myself and my husband, They even measured his tongue. After the testing concluded they told me they found nothing physically wrong with him and that on some of the testing he scored on the level of an 8yr old. Told us we had a very gifted son and that I needed to ignore him for 30 seconds when I knew he wanted something and to try and force him to ask with words rather then hum.

We tried this and it never worked. My daughter at the age 12 months was saying Momma and Dadda and that is when my son began to say Momma and dadda. As she began talking more and more, He followed suit and began "catching up"

They were both potty trained at the same time, He was 4 she was almost 3.

Every day for the first year of kindergarten he screamed and threw tantrums as I handed him off to the teacher. It was heart breaking. While in class the teacher told me he would just sit at his desk, not participate in anything and stair downward. She had to hold his hand to take him to lunch and sit with him and walk back with him. where he would sit the rest of the day at his desk. She eventually got him to color and engage him in play activities but he would not play with the other children.

First grade - He was much better. He did everything asked of him. The problem was after he was finished he would get up walk around the room and start playing with puzzles and things. He would be led back to his chair but he would not just sit there til the other children were finished with their work/projects. We talked with the teacher and He had told us that he thinks my son has ADD and could be treated with medication. So back through more testing. Autism kept coming up. We were assured he did not have ADD. Finally after hours of phone calls to the school and board of education in our area. We had an appointment with a Teacher that specialized in Autism that made rounds to all of the area schools and would help us with the information we needed and where to go next.
She said he has border line High Functioning Autism. The scale was 70% and he was at 71% so she said we needed to get a Therapist diagnosis because she believed he had Asperger's Syndrom but was not qualified to diagnose it. Everything was so confusing.
After all the phone calls and frustration of dealing with Schools and Doctors and Therapists. Which took years... Time that was wasted in getting treatment earlier. He was officially Diagnosed as having Asperger's syndrom at the age of 10. He is about to celebrate his 15th birthday next month. He is in the 8th grade (We was held back in first grade)
We've had to deal with bullies cornering him in the bathroom and stuffing toilet paper in his pants pockets in elementary school. Being excluded from playground activities.
Now and thanks to Autism awareness. He has friends at school. He's very comfortable knowing he has Asperger's syndrom and has absolutely no problems telling people about it. He still doesn't understand body language or those little social cues that we take for granted every day. I've done all my own research on Autism/Asperger's Syndrom and mapped out my own goals for him and best way to get him ready for life outside the home because our insurance doesn't cover Autism related issues. The school only has an IEP and says he does not qualify for services for Autism because he isn't failing. He isn't failing because My Husband and I both work with him on any school subjects he doesn't understand. His IQ was tested 3 times over the past 7 yrs. 102, 128, and 98 were his scores. He's an A/B student. His grades fluctuate based on missing assignments. He does his homework but Somehow it never makes it back to the teacher.

Through all that we have went through (Being called bad parents, being accused of Child abuse by not only neighbors but the various schools because obviously we had given our child autism through abuse) The Looks you get at the Grocery store because your 10yr old is hand flapping and making repetative noises etc. Through all of it I do not have a single regret. My Husband and I are still happily married and both our children are happy. All of the work we have done with him... Teaching him how to joke. (Jokes before 2 yrs ago were lost on him... but he gets them now which maybe not a big deal to most other parents but to us it was monumental. He now jokes with me on a daily basis and he understands why its funny. The only real issue we have now are social cues... which he's learning and improving on those as well.

From hearing "you're son has Autism" to now. To me it just isn't that big of a deal. Life goes on. I still have the worries and concerns about when he's ready for his first apartment away from home.. Driving a car. Normal Parenting stuff. Ours just has a little twist. I am very proud of my Son, he's taught me more about life and taking things slow and it still being ok then anyone else I've ever met.

Thanks for reading :)

Currently rated 5.0 by 4 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags: , ,

Comments

2/28/2009 6:47:29 PM

Your story is great and all too familiar. "Professionals" are forever telling parents to not worry and that there is nothing wrong with their child. Kudos to you and your husband for believing in your son and exerting the efforts to get him where he is today.

Pat

3/19/2009 10:56:36 AM

My son is HFA and is struggling at school (he is in a mainstream pre-prep). He also is repeating reception. Hopefully he will get better as he gets older, although he is behind his peers. He has a couple of friends, a little brother and a some cousins - so not completely isolated. I am amazed that people could be so cruel to accuse you of child abuse. There are some very stupid and ignorant people out there. Having a child with autism is quite isolating and it is hard to find people going through similar things, although it never is quite the same.

My son is very good at seeing patterns, making things out of objects, very symmetrical and very complex. I cannot believe that there isn't something he will be good at or want to do. Unfortunately we get told he is "globally delayed" (not so much now, but it is always implied) by his teacher. I think his development is more asynchronous. I think he is a leaper too. He didn't ride his scooter and then suddenly he took an interest and now he is whizzing up and down the road on at top speed.

Emma

6/18/2009 8:13:28 PM

You are really great parents! My son was recently diagnosed as an Aspie and he's 21.... why didn't I see this long ago? He did so well in high school and on SAT's, etc., went on to a top 25 nationally college.... and then he crashed, and crashed again, and again. The only diagnosis we had rec'd was depression and then ADD beginning in 11th grade... I am SO glad to have this Asperger's diagnosis to help him figure out what next steps to take and to know how to better communicate with him and support him now. But, I would have given anything to have opened my eyes and looked beyond academic success to have had an earlier diagnosis. It's great you are on to Aspergers now and not later!

lynn

9/21/2009 11:17:42 PM

I can only image what this has been like for you. It seams that every day something new is found out that causes or leads to Autism. I know weather or not to give children shots is a hot topic due to this issue.

Insurance short term

10/13/2009 5:03:06 AM


Admiring the time and effort you put into your blog and detailed information you offer!

Acne

10/14/2009 1:59:07 PM

Just try to smile for about 2-3 mins then you can get back to work

personal loans

10/28/2009 8:34:38 PM

Do you have any more info on this?

easy personal loans

11/3/2009 8:49:20 AM

Autism has a strong genetic basis, although the genetics of autism are complex and it is unclear whether ASD is explained more by rare mutations, or by rare combinations of common genetic variants.[4] In rare cases, autism is strongly associated with agents that cause birth defects.[5] Controversies surround other proposed environmental causes, such as heavy metals, pesticides or childhood vaccines;[6] the vaccine hypotheses are biologically implausible and lack convincing scientific evidence.[7] The prevalence of autism is about 1–2 per 1,000 people; the prevalence of ASD is about 6 per 1,000, with about four times as many males as females. The number of people known to have autism has increased dramatically since the 1980s, partly due to changes in diagnostic practice; the question of whether actual prevalence has increased is unresolved.[8]

How to Best Treat Autism

11/30/2009 4:37:49 AM

I guess there's always an easier way ...

pay day loans

12/1/2009 3:08:43 PM

Hmmm interesting stuff

payday loans

12/5/2009 5:26:13 AM

I like your blog but how do I subscribe?

loans

12/26/2009 4:47:23 AM

Interesting post

payday loans

1/6/2010 3:05:21 PM

Just wanted to say thanks for this.

payday loans

Add comment

 

biuquote
  • Comment
  • Preview
Loading



Content © 2008, AutismIsOK.com. All Rights Reserved.Website Development by 1011 Web Solutions