I have a story of my oldest son and I will try to go into detail as much as possible. I had my little boy, Seth,in 1999 as a first time mother and having never been around small children at all in my life. He was born 5 weeks premature and was in NICU for the first 9 days of his new coming into this world. He had so many breathing problems and jaundice. The hospital that he was at, I had a Registered Nurse that had been taking care of him that told me that in the last 25 years that she has been a nurse and taken care of babies, she had rarely seen a child that had the hair that he had. It was at that time brown with a silver tint to it and also the same silver tinted hair down his spine. I thought to myself that I just had a beautiful baby.

The doctor, after pleading with him to please let us take him home by Christmas, gave us the option to put him on a heart monitor and our baby got to come home on Christmas Day. We went through a lot being first time parents. I went back to work after maternity leave and on my second day of being at work, I told my boss that I just have to go, I need to be with my baby. After a 40 minute drive back to where we lived, I went to get my son from the daycare and when I walked in, he was asleep in the back of the room in a bouncy seat placed inside a crib. I walked back there to him and I realized that he didn't have his monitor on. I then asked the daycare worker where his monitor was and she said that it was in the cabinet, which was about 20 feet from him. I then asked her when was the last time that she had checked on him and then she replied "about 10 minutes ago". I then took my baby home and I discussed with my husband and told him that our baby comes first and I am quitting my job to take care of him. So I did and I stayed home and took care of him. He was on the monitor until he was about 5 months old, due to apnea.

He really seemed to be fine and was growing up so quickly and then I noticed that when he was about a little over a year old that about a month after getting his last rounds of vaccines, that he stopped saying "mama","dada","bye-bye"...and we just thought it was a time that he just didn't want to talk. He then started at the age of around 18 months with a very high pitched very fast voice talking and we really couldn't understand him and he made no eye contact at all. Then by the age of 2, he was placing around about 40-50 match box cars all lined up from one side of the living room to the other and they were all perfect and could not be out of line at all or he would get upset. I then thought that something just isn't right, so I took him to his pediatrician for my concerns that something just isn't right at all. The Doctor referred him to a Developmental Center where he was evaluated and at that time he was less than 3 years old. It was recommended that he have Physical, Speech, and Occupational Therapies. We did this until he went to Kindergarten.  The whole time, everything we have had to deal with, all the emotional and sensory issues, were overwhelming. When he got to be 5 years old my husband and I just couldn't work things out at all. I couldn't take it anymore with all the verbal abuse towards me and I will say it was never around our son.  We were together for 12 years, we were then divorced in 2004. Still trying to help our son as he was going to public school and getting picked on by so many children hitting him and making fun of him.

One afternoon I went to pick him up from school and he didn't show up outside the front of the school, after 5 minutes of waiting when the bell rang, my youngest son and I went into the school office asking where he was. An office worker went with us on the hunt for my little boy. We found him on the west side of the school on the playground and we both kept calling out to him. He was just in an absolute daze just looking around. As I was going to him, I was calling his name repeatedly and finally when I got to be about 5 feet from him, he then snapped out of where ever he was and then responded. This was one of the scariest times of my life. not knowing where my sweet boy was. With knowing how my ex-husband is, I made an appointment with the Developmental Center again on my own cause I just knew that something just isn't right with my son.

I took him to the evaluation and testing. After being there for 3 hours, all of the doctors decided that they need to see him back for further testing and evaluation, due to the tests that they had performed he didn't pass. I then was very concerned about this so I told my ex-husband about this. I then later found out that he canceled his appointment for the further testing. This was 2 years ago and my son is now 9 as of Tuesday. All I want to do is get the proper treatment or therapy for my boy, and my ex is fighting me all the way. There is so much more to this story and I really need help in trying to get help for my son.