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Autism and the Fourth of July

by Pat on Jul 5, 2009 at 7:11 PM Filed in Autism and Stress | Parenting Autistic Children | Stories About Nick

Last week my sons started asking lots of questions about the 4th of July. No, not the questions about how we would celebrate or if we would go visit family or if we would have a cook out. No, their questions were about fireworks, specifically, would they have to hear any?  If you have a child with autism, you may experience the extreme anguish your children feel when they hear the loud popping noises of fireworks. I don't particularly care for loud noises either, but my kids absolutely obsess about this noise. They start worrying about a few weeks ahead of time.  Do we live in the city limits?  Can people shoot off fireworks in our neighborhood, and so on.

One morning last week, Nick said, "I wish we could just skip the month of July." I said, "oh, you want to go straight from June to August since that is your birthday month!"  "NO," he shouted at me. "I don't want to have the 4th of July."  By Thursday, the boys had made sure they knew where their earphones were and had them at the ready. We've used noise reduction earphones for a long time for loud music, loud movies, etc. We were supposed to go to Missouri for the 4th of July weekend and visit my brothers and my mother.  However, on Wednesday and Thursday when we discussed this in our family and the boys realized that there would be no avoiding fireworks, they refused to go. My brother lives in a rural area and there were definitely going to be fireworks there. I've learned to at least avoid exposing people I love to the meltdowns that something as simple as fireworks can spawn.

On Thursday evening, a neighbor set off a few fireworks a block or so away.  Nick and Will became frantic. Nick had on his earphones and was carrying the telephone around. He wanted to call 911.  I told him that fireworks were not an emergency and that he could not call 911.  He dialed the neighbor's phone number repeatedly. They did not answer (thankfully).  He left wild messages for them to stop shooting off fireworks.

Friday night was a repeat of Thursday night and it wasn't even the 4th of July yet. On Saturday, I got out ear plugs to go under the earphones. The boys had them in by 6:00, just to be ready. At the first sound of fireworks nearby, they jumped in bed and threw the covers over their heads.  They slept all night long with the ear plugs and earphones securely in their ears. Just for good measure, a gigantic storm, complete with thunder and lightning followed the fireworks.

This morning, there were smiles all around.  "No more fireworks, right Mom?" they asked in unison.  I smiled, hugged them tight and thanked God that another 4th of July had passed.  

 

Autism Changes Life Forever

by Pat on Feb 1, 2009 at 4:22 PM Filed in Christian Autism Stories | Parenting Autistic Children | Stories About Nick
My life can be divided neatly into two categories--before autism and after autism. Autism grabs your life in a way that you cannot imagine if you are not affected by it. There are so many things that change. Your dreams, plans, goals, aspirations are all set aside and replaced by new ones, ones that aren't nearly as lofty as before.  Life is no longer under your control, if indeed, it ever was. But after autism, you will learn more than ever to keep your faith strong and to believe that God selected you to parent this wonderful, eccentric child. Autism is truly a journey, not a destination.  The destination is unknown, but don't lose faith while on your travels.

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Pat's TV appearance on The Nancy Grace Show

by Pat on Jan 6, 2009 at 12:43 PM Filed in Autism and Stress | Autism Legislation, Autism and Insurance | Christian Autism Stories | Parenting Autistic Children | Stories About Nick
 Watch Pat's tv appearance on the Nancy Grace Show.

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Nick Voices His Opinion About Pat's Appearance on Nancy Grace

by Pat on Dec 21, 2008 at 2:52 PM Filed in Parenting Autistic Children | Stories About Nick

As I was riding home from the studio after appearing on the Nancy Grace Show Thursday night, I called home.  Nick answered the phone and I asked, "did you watch me on tv?"  He said, "Mom, purple is NOT your color.  You should have worn red."  Then he hung up on me. 

I called back.  Nick picked up the phone and said, "Mom, I am mad because if you are going to be on live tv, I should be on with you."  I thought to myself, "Nick, you are the last person that should ever be on live tv without at least a 10 second delay.  He hung up on me again. 

Almost immediately, my cell phone rang and Nick said, "Mom, autism is NOT OK!!  I want to be NORMAL!!"  He was shouting at that point.  I said, "Nicholas, you are exactly the way that God intended for you to be. You are special to Him and very special to me." He said, "OK, Mom.  Will you buy me something on your way home?"  Just another chapter in our crazy, topsy-turvy world.

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Asperger's Has Parents at Their Wit's End

by Pat on Dec 20, 2008 at 1:24 PM Filed in Autism and Stress | Parenting Autistic Children | Stories About Nick
My son is 7 years old and we just found out that my son has Asperger's Syndrome and PDD-NOS. I have found myself questioning my parental ability. Am I a good mom? Am I doing everything that I possibly can to help? Now my 4 year old is showing some of the same signs. Right now I am remarried. My ex-husband feels there is nothing wrong. And my husband now cannot control his temper and loses it quite often. Me, I learned to control my temper, and let it build up to the point of a breakdown. Sometime I feel I have no support, and when he comes home, it is nothing but screaming and yelling. How can I maintain a normal house when there is only chaos?

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