Our diagnosis story is similar to most of the ones I've read here... I'm the mother of Ryan, almost 6 and autistic, Richie, almost 3 and Maelynn, 15 months. Ryan does not communicate well, does not express needs or illness unless it's very general, and then we're not sure if it's echolaia from a speech program (at times he'll repeat "I feel sick" robotically). He is at a social/emotional 2 1/2 year old level. He is amazing... very smart, musically inclined, and is the sweetest little guy you could ask for.
My other two children are developmentally typical, and they adore their brother! I've even seen my Richie, on several occasions, try hard to stim just like Ryan, watching him from the corner of his eye. Richie does not care that Ryan is different. He loves his brother with sheer, unadultered, unbridled adoration that only a child can express. Our life is tiring and often difficult, and even going to church is a challenge. We feel isolated in a lot of ways, just by the nature of what we deal with. We live in a small town in central Texas and it's a sweet little place to be! It really is! But the resources for Autism and any other special need are few and far between.
I know what it's like to desperately want to know your child... to want to do the best you can for him, but be in between a rock and a hard place. We love on a teacher's salary, and God always provides what we need... but so often when I do get the rare opportunity to speak to someone who also has a child on the spectrum, they spout off resources and things we "simply must" do for our child... things we haven't been afforded. The best thing we hear? Seriously? "I have no idea what you're going through, but I'll listen and I'll pray." The "I know a child who does so and so" and "why don't you just do so and so" and other well-meant comments, in addition to being so tired of being told "oh, Ryan can't do..." or "Ryan can't come in..." well, you see. They have worn on my already weary heart to the point where I just want to be home, where we all belong and we're all safe and accepted. Where we all know we're doing the best we can to provide what all of us need. I love church... I love Jesus more, though.
I will carry my children, all of them, regardless of ability level, regardless of how they fit into culture or how well they sit still and listen to instructions... I will continue to carry them to Jesus, because He knows and loves all of us! God made our children, He knows them better than we do. I don't know where Ryan hurts, but He does. Ryan can't tell me or anyone else his name, but whether or not I understand how he does it, I believe that the Holy spirit speaks for him, just as He does for me when I'm at the end of my rope. When I'm hurt, sad, and scared... when I've overheard one more person make a comment... when we're left out of yet another something... He feels my pain, and He helps me recover and start over again. His Word soothes the stings of insensitivity and ignorance of others, and He gives me patience to explain, yet again... or keeps my mouth shut so that I don't make things worse. He gives me the smile on my face and the song in my heart. He restores my soul! He gives me the peace of mind and the joy I need to make it not only through another day, but the next hour, or minute at a time on the hard days. He gives me the wisdom through His word to make some sense and to remember that He is in control of it all, even the things that don't make sense. Thank you for this site, thank you to everyone who shares. This is one of the very few times I've felt understood, and that is precious.
More of our story is at thischristianmomsjourney.blogspot.com, simply because God gives my every experience that it might comfort someone else!
It's going to be alright, everyone! Cling to Him!