Autism Is Ok - Welcome to my world Autism Is Ok

Mom Asks for Input About Difference in Son's Behavior

by Pat on Feb 28, 2009 at 5:53 PM Filed in Autism and Education | Parenting Autistic Children | Stories from Readers
I have a 12 year old son named Joseph. He is a great kid who has Autism PDD-NOS. My question is this. When I go to his IEP meeting they all tell me how normal Joseph is and he relates great with other kids. This is a different Joseph from home. There are days when he comes home frustrated, with headaches or wants to just sleep. He will talk to me a little about his fears. he ask me questions like MOM am I stupid or fat or he will state he is not really good at anything. They see a different child. I am so glad he is doing well in school, but this is not the meltdowns that I see. Is this normal?

Currently rated 5.0 by 1 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags:

Grandma Loves Autistic Grandsons

by Pat on Feb 28, 2009 at 5:50 PM Filed in
I have 2 grandsons from the same mother and father, Both are Autistic, The oldest is Savant and his little brother is Aspergers. I heard that both of these conditions are disability qualified. I would like to let my daughter know if they are. Also I love my grandsons very much. I am the "$100.00 grandma" because when I get to go visit them I tell both of them they each have 100.00 to spend for their birthdays. I am amaized at how well both can keep count in their heads. Both also just passed their tests and got their yellow belts in one of the martial arts.

Currently rated 5.0 by 1 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags: ,

Mom Shares Wonderful Story of Asperger Son's Improvement

by Pat on Feb 28, 2009 at 5:45 PM Filed in Autism and Education | Autism Family Facts | Parenting Autistic Children | Stories from Readers | Treatment for Autistic Children

My son was born March 7th 1994. He was a large Baby 10lbs 22inches long. He topped the weight and growth charts at the Pediatrician's office. Though he always lagged behind in the milestone charts. We were assured by our Pediatrician that all child develop at their own pace. He made eye contact for only seconds at a time and then become mesmerized by my hair or clothing or any movement from curtains and things like that.

at 6 Months He began rolling over
at 9 Months he began crawling
at 12 Months he began pulling himself up and trying to walk and continued repetative babbling.
at 15 Months he was finally walking on his own and we noticed he would open and close his hands rapidly all the time. My Husband and I thought it was just something cute he was doing with his hands.
When he became excited and happy he would flap his hands stand on his tippy toes and get a really focused "pucker face" look. This is when he began humming (rather then talking).

We had taken him to the pediatrician often and always told him about the things we were noticing and the lack of "Momma and Dadda" type speech. We were assured that we had a healthy baby and that children develope at their own speeds and not to force or rush anything.
At 18months, ur daughter was born. Our son, at first did not like her at all. If I was holding her, he would try and push her out of my arms and hum at me.
He then began to mimic her. Want to drink from the bottle laying beside her. He would hold her hand and suck on a pacifier if that is what she was doing. When she would babble and coo, he would babble and coo with her.

At 24 months and still only humming in place of speech. The Parents as Teachers lady that had visited us monthly since his birth had suggested we see an occupational therapist for testing. That he was showing signs of Autism. They checked: His throat, Hearing, Ability to walk up and down stairs, putting puzzles together, his interactions with our daughter, myself and my husband, They even measured his tongue. After the testing concluded they told me they found nothing physically wrong with him and that on some of the testing he scored on the level of an 8yr old. Told us we had a very gifted son and that I needed to ignore him for 30 seconds when I knew he wanted something and to try and force him to ask with words rather then hum.

We tried this and it never worked. My daughter at the age 12 months was saying Momma and Dadda and that is when my son began to say Momma and dadda. As she began talking more and more, He followed suit and began "catching up"

They were both potty trained at the same time, He was 4 she was almost 3.

Every day for the first year of kindergarten he screamed and threw tantrums as I handed him off to the teacher. It was heart breaking. While in class the teacher told me he would just sit at his desk, not participate in anything and stair downward. She had to hold his hand to take him to lunch and sit with him and walk back with him. where he would sit the rest of the day at his desk. She eventually got him to color and engage him in play activities but he would not play with the other children.

First grade - He was much better. He did everything asked of him. The problem was after he was finished he would get up walk around the room and start playing with puzzles and things. He would be led back to his chair but he would not just sit there til the other children were finished with their work/projects. We talked with the teacher and He had told us that he thinks my son has ADD and could be treated with medication. So back through more testing. Autism kept coming up. We were assured he did not have ADD. Finally after hours of phone calls to the school and board of education in our area. We had an appointment with a Teacher that specialized in Autism that made rounds to all of the area schools and would help us with the information we needed and where to go next.
She said he has border line High Functioning Autism. The scale was 70% and he was at 71% so she said we needed to get a Therapist diagnosis because she believed he had Asperger's Syndrom but was not qualified to diagnose it. Everything was so confusing.
After all the phone calls and frustration of dealing with Schools and Doctors and Therapists. Which took years... Time that was wasted in getting treatment earlier. He was officially Diagnosed as having Asperger's syndrom at the age of 10. He is about to celebrate his 15th birthday next month. He is in the 8th grade (We was held back in first grade)
We've had to deal with bullies cornering him in the bathroom and stuffing toilet paper in his pants pockets in elementary school. Being excluded from playground activities.
Now and thanks to Autism awareness. He has friends at school. He's very comfortable knowing he has Asperger's syndrom and has absolutely no problems telling people about it. He still doesn't understand body language or those little social cues that we take for granted every day. I've done all my own research on Autism/Asperger's Syndrom and mapped out my own goals for him and best way to get him ready for life outside the home because our insurance doesn't cover Autism related issues. The school only has an IEP and says he does not qualify for services for Autism because he isn't failing. He isn't failing because My Husband and I both work with him on any school subjects he doesn't understand. His IQ was tested 3 times over the past 7 yrs. 102, 128, and 98 were his scores. He's an A/B student. His grades fluctuate based on missing assignments. He does his homework but Somehow it never makes it back to the teacher.

Through all that we have went through (Being called bad parents, being accused of Child abuse by not only neighbors but the various schools because obviously we had given our child autism through abuse) The Looks you get at the Grocery store because your 10yr old is hand flapping and making repetative noises etc. Through all of it I do not have a single regret. My Husband and I are still happily married and both our children are happy. All of the work we have done with him... Teaching him how to joke. (Jokes before 2 yrs ago were lost on him... but he gets them now which maybe not a big deal to most other parents but to us it was monumental. He now jokes with me on a daily basis and he understands why its funny. The only real issue we have now are social cues... which he's learning and improving on those as well.

From hearing "you're son has Autism" to now. To me it just isn't that big of a deal. Life goes on. I still have the worries and concerns about when he's ready for his first apartment away from home.. Driving a car. Normal Parenting stuff. Ours just has a little twist. I am very proud of my Son, he's taught me more about life and taking things slow and it still being ok then anyone else I've ever met.

Thanks for reading :)

Currently rated 5.0 by 4 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags: , ,

Mom Seeks Strategies on Getting School to Teach Asperger's Son Properly

by Pat on Feb 28, 2009 at 5:30 PM Filed in Autism and Education | Parenting Autistic Children | Stories from Readers | Teaching Tips for Autistic Children
I am the mother of 7 year old twins one of which has aspergers/autism. He had a language delay so he has the dx of autism with aspergers tendancies, the other adhd. Alexander who has aspergers/autism is very intelligent and very high functioning, but the teachers at school insist on trying to conform him into a normal child. I have a problem with this, they want him to be able to verbally repeat directions or follow 2 and 3 step directions, he has a hard time focusing and staying on task,I told them that he has autism/aspergers it is not going to go away,and that he is not going to be able to do some of the things that a normal child can do, I don't understand why they will not focus on his strengths, instead of his weakness's.He is doing so much better in school now I thought, until I met with his speech therapist, and resource teacher. He is in the regular classroom and is pulled out during the day for speech,ot,small group work with the resource teacher. The teacher in the regular classroom is wonderful, and he does understand that his work has to be readable, and if he doesn't get to finish it he can bring it home to finish. He has an anxiety problem with completing tasks and an obsession with time and being on time.
He was with the speech therapist and he was to leave at 1:30 he was not done with the work she had given him so she made him stay past 1:30 which upset him greatly, I just don't think it is nessesary to do that, did he learn a lesson from that, no, that just ruined the rest of his day and ours when I picked him up at 2:30.That to me seems like almost torture for a child with autism, please tell me your opinion I have been searching the internet and have printed papers off on different teaching strategy's for kid's with autism, but don't seem to be making much progress with the speech therapist and resource teacher.

Currently rated 5.0 by 2 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags: , ,

Autistic Son Makes Remarkable Progress

by Pat on Feb 28, 2009 at 5:29 PM Filed in Autism Family Facts | Parenting Autistic Children | Stories from Readers
My son Robert was diagnosed back in 1993 in kindergarten. He is 21 yrs old today and a great joy in our family. He was diagnosed with the high functioning autism. From the time he was 8 yrs old to today he does practically everything for himself. He cooks, cleans and helps around the house. When we lived in California he learned to ride public transit, thanks to the wonderful people from the Salvation Army who help with children with disabilities. They found him a position stalking shelves at Michael's and the Salvation Army. He is very self-sufficient. Living in Oregon I have yet to find something as wonderful as we had in California. When Robert was in grade school we found that writing down his schedule for the day helped him out tremendously, he was able to cope with the changes that came day to day. We have never treated him different from his 3 siblings. He got punished just like the rest of them. I could not imagine not having him around. He is the light of my life and every breath I take.

Currently rated 5.0 by 1 people

  • Currently 5/5 Stars.
  • 1
  • 2
  • 3
  • 4
  • 5

Tags: ,

Content © 2008, AutismIsOK.com. All Rights Reserved.Website Development by 1011 Web Solutions